If the video doesn’t work, please use the following link: http://vimeo.com/pharmfresh/pftv-2012-epatcon-joncho
If the video doesn’t work, please use the following link: http://vimeo.com/pharmfresh/pftv-2012-epatcon-medrise
If the video doesn’t work, please use the following link: http://vimeo.com/pharmfresh/pftv-2012-epatcon-lkolodjeski
- What are the responsibilities of a community manager (in pharma)?
- How do you connect with the diabetes communities and become a legitimate participant in the conversation?
- How do you demonstrate the value of your engagement with the community back to the diabetes franchise and your organization overall?
- Through the insights you gain from being part of the community, are you able to create new approaches/product/interactions to bring value to the community?
- Diabetes seems to be a category where pharma and patients have been very aggresive/engaged online with each other — do you see this happening in other therapeutic areas?
- So much of Sanofi’s success in engaging in the diabetes space seems to be associated with the culture and leadership of the organization — what can the rest of the industry do to help make this happen with our own organizations?
If the video doesn’t work, please use the following link: http://vimeo.com/pharmfresh/pftv-2012-epatcon-markbard
- What’s the status of the Digital Health Coalition at the moment?
- How receptive has the FDA been to some of the overtures that you’ve brought to them about how the industry should be behaving in the digital space?
- What theories are you exploring around disclosures (via social media platforms)?
- The financial industry has come up with several technological solutions to overcome legal/regulatory concerns — is pharma industry really lagging in that respect?
Last week, Marc and I attended ExL’s ePatient Connections 2012 conference in Philadelphia, PA. We’ve got quite a few intereviews from the conference to share with you, but while we are still ploughing through the video editing process, here’s a treat from my dear friend, Silja Chouquet (CEO, WhyDotPharma)…
As a long standing tradition at #ePatCon, they’ve always had a Pecha Kucha session, where brave participants are given 6mins and 40 secs to present 20 slides, where each slide is advanced automoatically every 20 seconds; so the speaker has no control of when it advances.
This year, Silja performed an “Ode to Pharma” (as I’m calling it), where she rhymed her way through a lyrical performance to some cool jazz music. I’m proud (yet embarassed) to say that I contributed to a mere 2 lines and even then, they weren’t very original, but she managed to fit it in anyway. Here’s the video and the lyrics below (you can also download the PDF of her slides here):
If the video doesn’t work, please use the following link: http://vimeo.com/pharmfresh/epatcon-pechakucha-silja
Discovered too late I had to do a Pecha Kucha
Had to ﬁnd something quick and hurry up mucha
In fact for a while now I’ve been meaning to express
My thoughts on our industry, talk about our progress
Our achievements and efforts- Something different, you know,
Not the usual stuff about our reputation being low
But I had a big problem, I was afraid you would laugh
Tell me it’s all about money and increasing earnings by half
I had another problem that was even bigger
I’m no good with time and thus you’d snigger
As I get all tangled up in my words and my thoughts:
The slides would advance, my tongue be tied in knots
So I decided to use music, English rhythm and rhyme
Which being German is crazy, but it’ll keep me on time
I would thus like to tell you though I don’t know a lot
About how patients have changed while you have not
I would also like you to carefully listen
To what pharma is doing well without any suspicion
Pharma produces medicines that can save people’s lives
Drugs that help children and their mothers survive
It researches cures for diseases like cancer
And funky stuff like Endothelial nitric oxide enhancer
So why is it that, despite these advances
Pharma’s reputation never enhances
Well, I believe it’s because if we’d saw a sushi dish
We’d refer to it as 250 gramms of cold dead ﬁsh
It’s this cynical vision that if we’d open our heart
We’d only reap criticism, be torn apart
Yet patients today want care and connection
They demand information but also support and affections
They will search for the answers and are not afraid to ask
and you can help them with this incredible task
“We are not allowed to, our hands are tied
We would love to, believe us, we tried”
But our lawyers wont’t let us “, you’ll say
And point your ﬁngers to the FDA
Yet there is no single rule, nor any regulations
That forces you to be dull in your communications
In fact Boehringer just launched a new game on faeebook
that allows people to understand pharma’s outlook
You can set up your laboratory and develop new drugs
Against some of the world’s most potent drugs.
Then all your experiments explode and you lose all your money
Which, at least in the game, is really funny
We also need to involve patients from the start
Phase I through Phase IV have the patient at heart
We need to learn how to reach out and crowd source
Because if we don’t, it’s the patients that will have us outsourced
Boehringer, again adopted this mission
By asking everyone for their submission
Of ideas to drive awareness on stroke prevention
Which brought them new solutions and media attention
Physicans also need our help and assistance
A lot of them suffer from social media resistance
They are skeptical and often afraid
Overwhelmed by this information in which they have no fate
Pharma can help them overcome their fears
By connection patients to physicians and physicians to their peers
This is what Pﬁzer in the UK has done
Their Monday opportunity to talk is not only fun
it allows men to talk to doctors anonymously
which in this speciﬁc condition can be key
So: Stop, collaborate and listen
Because patients are on a brand new mission
You can say all the right things but still show your affection
For the patients that need to feel your connection
Yet it starts with something very basic
You have to STOP what you’ve been doing sofar – let’s face it!
It is time: Social media reaches millions of patients each day
And you have to be there to assist them along the way
It is time to put quality health information
In the hands of engaged and empowered patients.
Pharma and social media got off to a bumpy start
But for patients its been a love affaire that will not tear apart
So now is the time for pharma take off to the social media sky
Time to take concrete steps and to learn how to ﬂy
If the video doesn’t work, please use the following link: http://vimeo.com/pharmfresh/pftv-sxsw-chronicbabe
- Jenni’s SXSW presentation about needing “Superheroes and a Justice League for Health Communities”
- What are the problems that health community leaders face? Why is there a need?
- Why is there a lack of interest in health communities, compared to groups like “mommy bloggers”, even if they share the same demographic?
- How can we solve this problem through collaborating and uniting? What is your vision?
- Are you looking beyond the health community for help on HealthCommunityHeroes.ning.com?